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Sun
Feb 3 2002
Hi there, it was two weeks ago my brother found out he was HIV positive,
I thought no big deal and knowing that there is alot of medication out
there thatwould make him feel well again and also that he would be around
for a long time
because we have all these medications that are making a difference. Unfortunately
3 daysafter him being diagnosed he ends up in the hospital and many complications
come about. Now we find out its full blown AIDS and I am so scared of
loosing the
most incredible brother and friend anyone could ever imagine having.
My question to you is I know that life can go on for a long time with
HIV, but realistically what are the chances once you are full blown? My
brother has liver disfunctions, fluid in his stomach, chronic hepatitis
B, PCP, TB in the blood stream and
major breathing difficulties. I just spent two incredible weeks with him
and he is still in the hospital. My brother is ready to fight and I will
fight with him, but please tell me and I won't share it with him but how
long once its gone this far..........I don't need exacts but I want to
prepare myselfand I know I will never be ready. This is the first time
I let it out and realizeI should probable go talk to a counselor and I
am sorry for going on and on.
Thank you and God Bless you.....
Hello,
thanks for visiting the site although l really wish it was under different
circumstances. I'll tell you first up that l'm not the one to ask the
question to, l'd love to be able to give an answer but l don't have
the expertise. I can tell you a few things which may help though.
Firstly, there is a website that can tell you. It has councillors and
dr's online and you can ask on the internet. The address is http://www.thebody.com
Having run this website for over three years, reading the stories, meeting
HIV+ people l can say that it seems that full blown AIDS can vary. There
are stories from men that l have heard where their prognosis is not
looking good but they pull thru and the treatments get them going again.
But it all depends on the acquired diseases and your brothers strength.
I can also say that your support,love and being there is something very
special.
I'm sorry that l can be of not much more help but do visit the other
site and ask your questions.
I can only send you support and strength and hope that your brother
pulls thru this.
Regards,
Carolena Helderman
project manager
HIV/AIDS Positive Stories
Thank you for your
response and unfortunately I know the answer of how long it takes. My
brother last 2 weeks and past away on February 5th. I want to thank you
for your website and I will continue to be involved with it and help others
when possible.
Thank you
Mon
Feb 4 2002
location = australia
im a 27 year old female i have just contraked HIV. i have three lovly girls
hey r 10/9/7.im not that conseard about having hiv i have got if for a reason.my
partner is also hiv posative and we both surport each other he is more worry
about it then what i am.as long as we r there for each other then every
thing will be find im just hoping that they can find a vacine for it. im
just living my life the best way i can for my chidlren.there r the reason
im not to worryed about it and my partner as long as we have a grate life
together from now well thats all that matters to me. thank you for reading
my story.
6
February 2002
location = India
I had been tested positive (HIV+) two years ago-(2000) but living with
good physical and mental conditionwithout any infection. My parents are
forcing me for my marriage ,but i dont want to spoile any good girlslife.
Iam in a critical condition with urgency .
Me belonging to KONGUVELLAGOUNDER caste , HINDU religion , ( Me belonging
to uppermiddleclass family)- seeking my life_partner with open-heart (she
may be tested Hiv+ or some other illness ,but she must with good physical
and mental condition now).You may come across with some girls fitted with
above catagery ,
you can help me to find them or tell me how to search & find them
through net or in the real world.
Trusting you. Waiting for your reply
Thank-you for visiting
the web site and telling your story.
I don't have a lot of experience with places which you can find information
from in India but l do have one contact email and it may be a start
in finding out more.
Positive Women Network of South India - is a self help group of women
living with HIV. We operate from our headquarters at Chennai, Tamilnaau
India.
~ Counselling, monthly support group meetings for women living with
HIV
23 Brindavan Street,
West Mambalam, Chennai - 600 033
Tel: 044 - 371 1176
Email: poswonet@hotmail.com
Regards,
Carolena Helderman
project manager
HIV/AIDS Positive Stories
Wed
Feb 6 2002
location = massachussetts
MY MOTHER DIED OF HIV 7 YEARS AGO AND NOW MY STEPMOM HAS HIV NOW, HER
YOUNGEST SON DOES NOT KNOW SHE IS HIV POSITIVE... I GUESS MY QUESTION
IS HOW CAN I BE OF SUPPORT FOR MY STEPBROTHER WHEN HE FINDS OUT HIS MOM
IS DYING WHAT DO I SAY? AND ANOTHER QUESTION DOES A CARRIER HAVE A LONGER
LIFE THAN A REGULAR PERSON THAT HAS HIV?
A ridiculous amount
of time has passed before answering your email, l apologise for this.
I think that you may know more about this than anyone, you know what
it is like to have gone through this and l'm sure you will be of strong
support to your step brother.
There are some stories from children who have lost their parents, so
reading these may give you an idea of how others have coped with losing
their parent. You can find them on the stories index page: http://www.hivaids.webcentral.com.au/text/stories.html
I have found a page on another website and this specifically discusses
what you are talking about.
http://www.avert.org/children.htm
I don't know what the health status of your step- mother is and whether
she is on treatments but perhaps the outlook is more positive today
than seven years ago when your mother had HIV.
If you feel like you need someone to talk to, there is a very good web
site which gives expert advice regarding HIV/AIDS and there are councillors
to answer emails. Perhaps you could discuss your own concerns.
http://www.thebody.com
I'm not sure what you mean by "DOES A CARRIER HAVE A LONGER LIFE
THAN A REGULAR PERSON THAT HAS HIV?", so l canno't answer this
question.
Sorry again for leaving it so long, l lost your email in the system.
Regards,
Carolena Helderman
project manager
HIV/AIDS Positive Stories
Wed
Feb 6 2002
location = San Francisco
Hello,
I just wanted to express my account about HIV/AIDS. I am 32 and a single
mother of a 4 year old toddler. continue story
Thu
Feb 7 2002
location = Adelaide
Im a hiv positive 27 year old male and was in the process of searching the
web for some sort of information on taking recreational drugs whilst on
combination therapy and was unable to find all that much information on
the subject. I know recreational drugs arent a safe bet at the best of times,
i have previously tried a small amount of speed and ecstsy while on treatment.
could you possbly point me in the right direction for some info on this
subject if possible.
Hi ,
I don't know what is on the Internet but in my travels, l found a brochure
yesterday called 'Looking After Yourself' Recreational drugs with HIV
treatments.
If you send me your address l'll put it in the mail but l'll list the
links on the back of it......l haven't looked at these sites.
http://www.hafci.org/drugs/
http://www.gaypsychotherapy.com/outdrugarticle.htm
http://www.thebody.com/poz/survival/6_98_warning.html
Hope this helps, if you want, l'm happy to send the info. to you.
Cheers,
Carolena Helderman
project manager
HIV/AIDS Positive Stories
Thu
Feb 7 14: 2002_
location = massachusetts
Hello, my story is about myself and my faince. i am negative to hiv and
my fiance is positive, we met in an hiv/aids chat room, learning about each
other. we became very fond of each other. and plan to get married this july
4, 2002. I never thought i would fall in love with a man that is terminially
ill. But now i understand its not even about the sickness, its about helping
him live a long life.. i want everyone to know out there, that i think its
great for thouse who really go with their heart no matter what can get in
the way, God bless. and please keep your head up....
hiv doesn't win, its the positive minds that do :)
Sat
Feb 16 2002
location = Dallas/Sydney
I just wanted to compliment you on the excellent work you have done. With
all the apathy in the world in re: HIV we need to keep the information flowing.
Take care and stay well...
Hello,
Thanks for visiting the site and for your compliments, hope you continue
to visit.
Regards,
Carolena Helderman
project manager
HIV/AIDS Positive Stories
Sun
Feb 17 2002
location = new jersey
i have a question about HIV? my hubby has a rash on his neck and dr told
him it was a fungal disease but im afraid its aids since he did sleep with
someone very unclean. he used protection but not sure if it broke or not!!
pleez if you can tell me the symptoms od hiv and if a rash around his neck
is one! i beleive it happened about 5 mths ago
Hello,
Thank you for visiting the site, l'm not a medical professional and
cannot answer your question. Check this page http://www.hivaids.webcentral.com.au/text/faq.html
on the site and look at these sections
How can someone be infected with HIV?
What is HIV?
If you need more information, there are further links from that page.
Regards,
Carolena Helderman
project manager
HIV/AIDS Positive Stories
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