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Fri
Jan 5 2001
location=:
Philadelphia, pa
As I watch alot of my friends die from AIDS. Each one of my friends had
different lifestyles. One friend who is HIV positive. Once she found out
that she was positive she really became loose with herself. Back in the
late 80's, I use to ask her if she wasn't scared of contacting AIDS. Her
response was always, " I KNOW HIM, HE'S COOL" then the drugs sat in. finally
when she went to find help for her drug addiction, that was when she found
out that she had the virus. Now she switches boyfriends 12 days a week,
makes corner money. I use to ask her what would she do if the (present)
boyfriend found out that he had the virus, what would she do, she told
me that she would argue with him and make him think he gave the virus
to her. She still does this up to this day. Another one of my friends
brothers have the virus. One died years ago, he married a guy that was
infected with AIDS, the other brother knew and possibly infected a woman
in her 50's, telling her he was not infected.(he is younger) Another friend
who died last year from the virus was infected by her husband. She on
the other hand was a good woman. She did not believe in cheating her husband
or other things. I share these stories so that people can hopefully understand
how easy it is to contact the virus. My last friend I watched him go through
his last stages. We had to hold his arms to walk him in the drug store
to get his medicines. He was so feeble, he could not sit up, we had to
feed him, wash him. Sores broke out around his mouth all the time. a person
dying of AIDS is a sight so sad, the television stories can not even begin
to show how sad it really is.
Fri
Jan 12 2001
location=:
Toronto
Hi there! I wondered if you know of any info. That I can find on the net
with regards to "bug chasers", that is, those who attempt to acquire HIV/AIDS
on purpose...I am doing a research assignment, and this sort of info would
really help me. Thanks.
Robyn
Hi Robyn,
Until now, l had no suggestions to make to you other that you should
post your question on the message board on the site and perhaps you'll
get a conversation going about this topic. I have also read an ad in
Talkabout which mentions Unsafe sex/barebacking where the gay community
choose not to use condoms. The ad is for a discussion board to discuss
this topic on the ACON site http://www.acon.org.au
(l haven't had a look yet.) It's not exactly answering your question
but perhaps you can also bring up your question on their message board.
But l'd certainly like to see you bringing this topic up on the Webcentral
board http://www.HIVAIDS.webcentral.com.au/text/board.html
Thanks for visiting the site
Carolena Helderman
Sat
Jan 13 2001
location=:
United States
Sheilas story
I was found HIV positive on feb.99. I told my 15 yr. old right away. But
cannot find the courage to tell my 10 yr. old. I know she couldn't handle
it right now because I am all she has. Because right after she was born
there father and I split up as I became drug and alcohol free. And have
been since. I also have a son in prison who turned 21 yesterday who I haven't
told yet. I didn't want to put anything else on him. Anyhow, Itook medicine
right away and became undetectable in 3 months also my cells went from 317
to 480. I got this from a new mate living a drug free life. How strange
when you get clean you would think that couldn't happen.
But anyhow here I am. Well my son will be home in May 2001 after 4 yrs.
I cant wait but now I have to let him know. The pain all over again. I have
alot of faith I go to church and I believe I will be here along time......
Thank you
Fri
Jan 19 2001
location=: Kuala
Lumpur
(My English is not very good) My bother is HIV positive. My family and
I just got to know about it 3 months ago. It was indeed a tragic thing
happening to me and my family. He never told us about it as he was worried
that we could not take it (We presume that it has been 6 years)
He was hospitalised for a couple of times and currently he is seriously
ill. We tried so many treatments as we wanted him to get well(though,we
know that there is no specific treatment). We were sincerely hoping that
he could resume his work as normal.
Now, I think that I'm going to lose him. He is unable to walk, lying down
on the bed. He lost weight about 35kg (previously he was about 60kg) I
really don't what to do. All of us love him so much. He is really a very
nice person. All of us are in great pain to see him suffering of this
illness.
What do we do? I really need a support.....please help me...
Hello,
I'm the administrator of the HIV/AIDS Positive Stories website. Thank-you
for visiting the site and l was sad to read your email. As l've not
been in your situation, l cannot give you any advice. I just wanted
to suggest that you read the stories under the carer and family section
http://www.HIVAIDS.webcentral.com.au/text/stories.html I also saw that
you have posted your message on the message board and l'm sure you will
get feedback from others who have gone through situations similar to
your own.
Thank-you for visiting the site and l really hope that you find support
from stories and the message board.
Regards
Carolena Helderman
HIV/AIDS Positive Stories
Dear Carolena
I received your E mail and thank you very much for that. I just got back
to the office as I had a long leave. On Saturday evening 20/01/2001 was
really a day that I will never forget for the rest of my life........He
left us forever..........Only god knows how I felt at that time....As
I mentioned earlier in my E mail that life is very empty without him.....I
really did not expect that he will go so early(though I realised that
one day he will leave us).
Now it's been a week that he left us........I have to be strong to face
this reality even though it is hard to believe that he has gone. He will
always in my heart......always.........but now I really miss him so much..........
I promised that I will keep supporting those people with HIV+ That is
the best effort at least I can do to for them. I do hope that we keep
in touch each other. Write to you soon.
Many thanks and best regards. AJ
Thank you for
telling me your very personal experience, somehow 'l'm sorry to hear
of the loss of your brother' is not enough. But l hope that you are
finding a way to deal with this and you of course will continue to miss
him for a very long time. Once again l'll mention that perhaps you could
use the webBoard on the site if you need to speak to others for support,
people who have been where you are now and can give you advice and comfort.
All the best to you in this time AJ
Carolena
Positive Stories
Fri
Feb 2 2001
location=: Qld, Australia
I don't have a story I would just like some help. My good friend Geoff
died 12th August 1992 in Febuary 1993 I went to a dedication for the quilt
project, where two of his panels were on display. I've now lost track
of the quilt and would like to know where it may be now??? Can anybody
help me find it now.? I would love for my children to see it. Any help
would be much appreciated
Hello,
You could try and contact the 'Quilt Project Melbourne', l'm sure they
will be able to answer your question. They say that all panels are numbered
and catalogued by the national office and know where the panels are
at all times.
Quilt Project Melbourne Room 19 6 Claremont street South Yarra 3141
9826 1954
I hope that you find the quilt panels and share them with your children.
Regards
Carolena
HIV/AIDS Positive Stories
Sat
Feb 3 2001
location=: USA
Hello, My name is Hilary, I'm a 16 year highschool student in a small town
here in the US. We were assigned to write what is known as an I-search paper,
which documents a personal journey we take as we research a project. The
focus of my report is HIV/AIDS and women's health around the world. I think
your site has been truly the most informative, welcoming and well rounded
of those I have visited. I liked it so much I have it bookmarked and would
love to come back and learn more as I continue through my research, this
is exactly the personal touch I need to stress my papers point. xoxo
Thanks very much
for your support Hilary. I live in Melbourne, Australia and work on
the web site by myself.....generally on my laptop whilst sitting on
the couch! So it's always great to hear that it's been of help and that
you think the standard of the site is of good quality. Especially that
you like it for what it was originally intended, to give a personal
perspective from people infected or affected by HIV and AIDS. Thanks
again and good luck with your paper.
Carolena
HIV/AIDS Positive Stories
It is totally my
pleasure to be able to enjoy this site, also it has helped me to refocus
my paper. This was completely unnecessary of you to e-mail me, but I was
wondering if you could help me, I know you have a list of chat schedules
but I haven't been able to reach any of them. I would love to take a chance
and chat through your site if it is at all possible? Any help you could
give would be greatly appreciated... xoxo Hilary
At this stage l
have not opted to have chat on the site....l've been waiting to see
how the message board goes and that's been rather slow to get going.
Perhaps in the future l will include chat but it's harder to moderate
and that's why it's on hold Keep trying with the message board....it'd
be great to see that going. Carolena
Sun
Feb 4 200
Vic,Australia
Hi,
I'm Wayne (THE NEEDLE AND THE DAMAGE DONE STORY).
Further news to the story, is my successful outcome to the lawsuit. $429,000
plus costs. Not a bad result and now gives new ground for others who have
suffered through work
WAYNE
hi wayne,
thanks for updating me with your information and congratulations on
the result and it's certainly great to be setting this for others who
suffer through work. I've also got to say that your story is the one
that has always stayed in my mind, one because of the work situation
and also the nerve of that Doctor.
Thanks for allowing your story on the site as it's getting the message
out there, the site is currently getting over 12,000 people a month....over
200,000 hits, so it's certainly being read!
I'll add your update and congratulations again!
Carolena
HIV/AIDS Positive Stories
Mon
Feb 5 2001
Bamberg
Help me!!!! I'm an
infected gay who is fed up with this shit fucking world. I do not want
to live that way. Everybody's watching my lesions and my white skin.I've
lost a lot of my weight. When there is any wind, I'm always afraid to
fly away. Isn't there anybody in this shit fucking world who feels the
same and can help me to handle this situation????????
I don't of course
know what support centres there are for HIV/AIDS in your country, perhaps
there you will find support amongst others who are also experiencing
the situation you are in.
I can just suggest that you try and use chat or discussion boards on
HIV/AIDS websites, perhaps here you will find people who, as you say,
feel the same way as you.
There is a board on this site http://www.HIVAIDS.webcentral.com.au/text/board.html
or try a site which has many boards and professional responses http://www.thebody.com
Please look these up and l'm sure this will not make you feel as isolated.
Regards
Carolena Helderman
Tue
Feb 6 2001
location=: Uganda
I actually do (not)
have HIV or work directly on it but my brother is suffering and does not
get access to such valuable information. Please help me subscribe for
him. Send me information on how to
'm presuming that
your brother does not have access to the Internet, this site does not
have any sort of subscription set up, so there is nothing l could send.
All l can suggest is that if you can access the site, perhaps if you
have a printer, you could print some of the stories and give it to him.
Regards
Carolena
HIV/AIDS Positive Stories
Thanks, I will try
doing that but if you know of any other free subscription periodical please
let me know. Sam
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