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Thursday,
June 24, 1999
name: Jo
I love your site, and think that it is one of the best Australian sites
on HIV/AIDS. I would really like to get in touch with straight arrows
- if possible could you either pass my e-mail on to them, or post me theirs?
I am in a serodiscordant relationship, and have previously worked as a
client services and support officer for the Quac. As you can imagine,
their are not many resources up this way for straight +ve men or women,
so any help you can give us would be much appreciated.
Thanks again
Thank you for you
comments!
You can e-mail Straight Arrows at straightarrows@bigpond.com
Carolena - HIV/AIDS website designer
Saturday,
June 26, 1999
name: Julie
The organization sounds good (Positive Women), but the site's visual presentation,
with the large amount of horizontal and vertical scrolling required just
to finish reading sentences, was most irritating.
I don't know why
some section of the Positive Women site is doing this....as it is not
consistent on all machines. I will find out soon!
Carolena - HIV/AIDS Positive Stories/Positive Women website designer
~this problem has since been fixed
Monday,
June 28, 1999
name: Bob
I have been living with HIV since late in 1983 and received a diagnosis
of AIDS in 1990. I've surfed many websites concerning this awful disease
and this is certainly one of the very best I have come across. It's obvious
that a lot of love has gone into this project.
Thank You!
Tuesday,
July 6, 1999
name: Christina
I would like to see a place for women who have HIV & AIDS to have there
own chat room so gays & lesbian & bi women can chat with each other online
like me I'm HIV pos and I would like to talk to other gays & lesbian &
bi women thank you for letting me write this.
Thanks Christina
for your suggestion. It is possible that this will happen this year
but l was a little hesitant to how many people would want a chat room......but
it may happen! Until then, please feel free to submit a story...a paragraph,
anything to the site.
All the best.
Carolena - HIV/AIDS Positive Stories/Positive Women website designer
Tuesday,
July 6, 1999
I am a nurse working on an HIV/AIDS unit in Sydney. Our client base is mainly
men, but I am putting a resource file together for staff and anyone else
who should need info. and or advise regarding women living with HIV/AIDS.
This web-site has been extremely useful to me!!!
Wednesday,
July 28, 1999
name: Tina & Katerina
HI, we were just looking up different sites on HIV/AIDS on the net and
came across your page, it was great the information and links were outstanding,
and they helped us with our YR 12 studies! thankyou keep up the great
site!
Wednesday,
August 4, 1999
name: Tim Alderman
Unusual and interesting site. I will be reviewing it for Talkabout Magazine.
Keep an eye out, it will be favourable. I would like to submit a story
for the site.
Tim has sent in
his story, it can be seen in the Stories section of this site.
Carolena - HIV/AIDS Positive Stories/Positive Women website designer
Saturday,
August 14, 1999
name: Lee
I would like to say that this is a wonderful site. You see I am a married
man living with HIV for the past 3 years,and for my wife it has been very
difficult, so this site may be a way for her to see that we are not the
only couple dealing with this.
So keep up the great work and god bless you all.
Wednesday,
August 18, 1999
name: Rachel H
Hi, the reason I'm writing to u is because I would like to know if I can
talk to anybody about HIV, I went to go see my ob/gyn because I was going
to have surgery, but to my surprise my doctor came to my room and told
me that he I could not go through with the surgery because he found out
that my test came out positive, he told me that he barely caught it in
time but I don't seem to have any symptoms, I just wanted to know if there's
any place I can call or go to help me with the medication, because they
are so expensive for me, but I wanna get better I don't know if medicade
will help me or not so please if u can just let me know where I can get
help I would like to know can u please write me back a.s.a.p.
Thanks Rachel
Hi Rachel, From
your letter l am presuming that you are living in America, this makes
it hard for me to forward you to the right place as l am based in Australia.
But all is not lost because l can give you three website addresses which
l believe will be able to answer your questions and l hope that it is
able to give you some good information and comfort. Try these websites:
http://hopkins-AIDS.edu/ http://www.HIVpositive.com/
http://www.thebody.com
All these sites have good treatment sections and all have question/answer
sections where you can speak to Dr's in the field and l am pretty sure
that they are all based in America. I hope that this is of help to you.
All the best, Carolena Helderman
HIV/AIDS Positive Stories/Positive Women website designer
Wednesday,
August 18, 1999
name: Lewis
This is a really good site but I just wanted to know if you can send me
some booklets about AIDS because I'm in desperate need of help. I have an
assignment due in a week and I need some information. The only problem is
that I have to include the sources and the sources can't be off the internet.
Thanks Lewis
Hi Lewis, Sorry
that l didn't get back to you sooner, I've just got back from holidays
so this info. May be a little late for your assignment......hope not!
I don't have any information to send you but I'll give you some people
to contact. The Access Information Centre at the Alfred has heaps of
information and could send it on to you. Contact Suzanne on (03) 9276
6993 or look up the Victorian AIDS Council in the phone book and perhaps
they will mail you something. Hope it's not too late and thanks for
visiting the site, hope you pass the assignment.
Thanks, Carolena Helderman
HIV/AIDS Positive Stories/Positive Women website designer
Dear Carolena, Thanks
heaps for the help. I really needed it and I've still 4 days to finish
the assignment.
I'll try the number and see what I can get. Thanks again Lewis
Wednesday,
August 18, 1999
Would it be possible
to see or obtain information on how to care for children with HIV - toddlers
in nappies and school age?
Sorry that it
has taken me sooo very long to reply to your question.....didn't know
where to point you as l have not looked into the area of children.
I have noted down two websites which may lead you to people who have
more experience with the care of children. Also if you are living in
Australia, or just need better leads than l can give, then l would contact
Suzanne who works at the Access Information Centre at the Alfred Hospital
in Melbourne. She is a great resource of information! Her e-mail is
access@alfred.org.au
Here are the sites which l looked at but l found when doing a search
that there is a lot out there on information for children. http://www.HIVinsite.ucsf.edu/topics/children/2098.351d.html
http://www.AIDSkids.org
I wish that l could be of more help....but l hope that you have found
what you need or this information will help you get it. Thanks for visiting
my website www.HIVAIDS.webcentral.com.au I update the site weekly, so
keep visiting to read new stories and peoples experiences. If you have
the time in the future it would be fantastic if you could write something
of your experiences with caring HIV+ children and their needs and experiences....
as l mentioned, there is nothing on the site regarding children and
it would be much appreciated.
Good luck with your information search!
All the best,
Carolena Helderman
HIV/AIDS Positive Stories/Positive Women website designer
Dear Carolena
Thank you for your persistence on this topic, you have been a great help.
I will follow up your websites this week.
I did find some very good information recently but can't tell you the
site as I lent it to a foster care organisation. Will let you know the
site when it is returned.
I will also keep in mind the idea of writing about my experience of caring
for a HIV child.
Bye for now
Friday,
August 27, 1999
Executive Director, AMANI
Health and Wellness Center
My name is Debra Parmer, I am Executive Director of the AMANI Health and
Wellness Center in Akron, Ohio. I am very interested in learning of your
experience with support groups for women who are HIV positive. There are
currently no such groups in the Akron area. In our community, AIDS is
still a secret. We are experiencing a major shift in infection rates in
the African American community. Married heterosexual African American
women. You see the problem is that the husbands of these newly infected
women have sex with men who are infected. These husbands are returning
home to their unsuspecting wives and infecting them. I would appreciate
it if you could share information concerning your experience in the area
of support.
Thank you and I look forward to your response.
Thanks for visiting
the site Debra. I have passed your e-mail onto 'Positive Women Victoria'
who may be able to give you some feedback.
Carolena Helderman
HIV/AIDS Positive Stories/Positive Women website designer
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